{"id":806,"date":"2009-10-09T07:32:16","date_gmt":"2009-10-09T12:32:16","guid":{"rendered":"http:\/\/www.neffmusic.com\/blog\/?p=806"},"modified":"2020-12-02T10:58:16","modified_gmt":"2020-12-02T15:58:16","slug":"as-funny-as-a-brain-tumor-part-7","status":"publish","type":"post","link":"https:\/\/www.neffmusic.com\/blog\/2009\/10\/as-funny-as-a-brain-tumor-part-7\/","title":{"rendered":"As Funny as a Brain Tumor! Part 7"},"content":{"rendered":"

Well………..where were we? \u00a0Oh yeah, in Mass General Hospital, waiting for my next surgery. \u00a0As I remember, \u00a0it was 2-3 days later. \u00a0 They came to get me for the surgery and it was an emotional time. \u00a0This was the big surgery where they were messing with my nerves, arteries and not to mention my brain.<\/p>\n

I also didn’t know if the tumor was malignant (cancerous) or benign(non-cancerous). \u00a0I remember being wheeled in for the surgery and my Dad asked \u00a0“How you doing, son?” \u00a0I responded \u00a0“This isn’t fun, Dad”. \u00a0 I was wheeled away with out knowing if I would see my family again. \u00a0 I remember praying at that moment that if I died I would wake up in heaven with God and if I woke up here that I would be surrendered to whatever my condition might be. \u00a0I prayed hard for those two things.<\/p>\n

They asked me to count backward from 100 and I again tried to see if my will power was strong enough to fight the anesthesia……….I made it to about 96 again and don’t remember anything else. \u00a0This part of the surgery was pretty long. \u00a0I think it was 12-13 hours if I remember correctly. \u00a0I can’t imagine a surgery taking that long but there were a few surgeons involved that all had different duties in the surgery so I would imagine they all take turns.<\/p>\n

Next thing I knew,\u00a0 I was waking up.\u00a0 It was like I had just fallen asleep a moment ago. \u00a0 Now this may sound a bit strange, but I’m going to share it because it really happened and I want to be as factual as possible here. \u00a0When I started waking up I was in a big room where they put all the patients after surgery. \u00a0 The lights looked funny to me, like they were old. \u00a0I looked around me and it seemed like the medical equipment was also old.\u00a0 A nurse came over to me and she was the happiest nurse I had ever seen in my life. \u00a0She had a big smile and her clothes seemed like clothes you would see a nurse wearing in the 1950’s. All of a sudden it hit me…………I had been transported back in time to the 1950’s!\u00a0 <\/strong>You might think I am joking here but I really thought I had traveled back in time!<\/p>\n

\"\"<\/p>\n

I was giving it such serious thought,\u00a0 that I was actually thinking of all the things invented since 1950 and trying to figure out what I could make tons of money with (Not to mention heading down to Rayburn’s and buying some brand new SBA and Mark VI saxophones!!!). \u00a0I looked up a little later and I saw my parents walking up with big smiles on their faces. \u00a0I had never seen them with such big smiles. \u00a0My first thought was that these were imposters and that it had something to do with the time travel. \u00a0My Mom started talking to me and I interrupted her with the urgent question in the forefront of my mind “What year is it?” \u00a0She looked at me curiously……… “What year is it?” I repeated.\u00a0 She answered “1995, why?” \u00a0 I responded slowly “Are you sure?” \u00a0She said \u00a0“Yes” and my parents exchanged a worried glance at one another. \u00a0The conversation went on about the surgery and how I was feeling. \u00a0 \u00a0The whole time my parents were talking though, \u00a0I was thinking that not only had I been transported back in time, but everyone else had also, \u00a0and they didn’t even know it! \u00a0 At no time did it occur to me that I was a bit wacky from the drugs, time travel was the only reasonable option that made sense of all this. \u00a0Over the next few hours I slowly returned back to reality…………<\/p>\n

The other thing I noticed when I woke up from the surgery,\u00a0 was that I was seeing two of everything. \u00a0It was like before when I was having symptoms and I got the double vision but now it wouldn’t go away. \u00a0Everything I looked at I saw two of. \u00a0A little bit later,\u00a0 a doctor told me that the surgery was very close to my fourth cranial nerve and that it must have been affected during the surgery. He told me that it \u00a0might \u00a0get better but we had to wait and see to find out. \u00a0\u00a0The doctors came in and told me that the tumor was benign (non-cancerous). That was a big relief! \u00a0 I wouldn’t have to go through chemotherapy and radiation. \u00a0They did tell me that they couldn’t get a small part of it that was in between a main artery and my cranial nerves. The Surgeons thought that it was too dangerous to try to get it out. \u00a0They did get out 99% of it though so I was happy. \u00a0I felt awful but I also realized that I wasn’t laughing hysterically anymore either. That might have been because I felt so awful though.\u00a0 We would see……….<\/p>\n

\"\"<\/a><\/p>\n

MRI showing the remnant of the tumor that was left after the surgery from Hal Blumenfeld’s book “Neuroanatomy through Clinical Cases” that I found about in 2019<\/strong><\/p>\n

The next week in the hospital was a nightmare.\u00a0 If you’ve stayed in a hospital for any length of time you will understand what I am about to tell you. \u00a0You can’t sleep, there is constant noise! \u00a0You have a life threatening surgery and now is the time to rest, recoup, get back on your feet.\u00a0 What happens? \u00a0You can’t sleep! \u00a0All you hear all night long is alarms going off, patients crying, patients screaming, patients yelling at nurses, nurses yelling at patients,\u00a0 nurses talking in the hall about doctor so and so and who’s dating who…………..You FINALLY fall asleep,\u00a0 and then a nurse comes in and wakes you up and says “I have to check your stats!” \u00a0AGHHHH! After a week of this, I was losing it. (I have nothing against nurses by the way, I ended up marrying one later in this story) \u00a0As the days went on, I would get up slowly and walk around the halls. \u00a0I had to go very slow and wheel my IV around with me. \u00a0I remember walking to a few of the lounges and looking out the windows at Boston. \u00a0I was happy to be alive but also very very tired!<\/p>\n

They finally let me go home.\u00a0 I felt awful in one sense but kind of excited in another. \u00a0I wasn’t laughing.\u00a0 I felt like I had control of myself again.\u00a0 I went home and tried to recoup and get my life back together. \u00a0They said I would be out of work for about 6 months as I healed but I think I went back to work managing the store after about 8 weeks. I was really bored at home and they said I couldn’t play my saxophone for a while. I had nothing to do. I finally went back to work and my life started to come back together. \u00a0I still had the double vision. \u00a0That wasn’t going way. \u00a0If I tilted my head far to the right and directed my eyes up a little I could see single. \u00a0I started walking around with my head tilted far to the right all the time so that I could see a single image. \u00a0It looked a little strange and felt uncomfortable but you do what you have to do.<\/p>\n

The other thing that I remember very clearly, was the difference between hearing music in stereo and hearing music in mono. I noticed this the most when I first drove my car after the surgery. \u00a0I had a really nice Lexus GS300 with a killer BOSE stereo system in it.\u00a0 Before the surgery, I would love driving that car around and listening to music. It would sound amazing like it was all around you. \u00a0When I drove it for the first time after the surgery,\u00a0 I put on some music and my first thought was that the BOSE stereo was broken. \u00a0I messed with the controls a bit but the sound didn’t get any better. \u00a0 It sounded dead! \u00a0Flat! Hallow! Diluted! \u00a0I realized that this was how I would hear music for the rest of my life and I was so depressed. I guess in the grand scheme of things this isn’t such a big thing but for me it was huge. \u00a0I listened to music all the time.\u00a0 I was a musician! It was one of the things that I loved the most in the world and now it would never be the same for me.<\/p>\n

Now, on the positive side of things……… you might remember earlier in the story,\u00a0 I said I had no health insurance. \u00a0I think God was really looking out for me because I took that job as a manager of a store and got insurance a few months before I was diagnosed with the brain tumor. \u00a0The insurance covered most of the bills from the surgery and everything that that entailed! A few months later, I was attending a management meeting for the company and the administrators were talking about how the company had really blown the budget for 1995 with their health care costs being about 300,000 over budget that year (the company was self-insured).\u00a0 One of the managers looked over at me and in a joking way said “Thanks a lot Steve!”. \u00a0 Everyone kind of chuckled about that but it was a sobering moment for me. \u00a0 I don’t know how much all those bills added up to but it must have been in the hundreds of thousands of dollars. \u00a0I am very grateful that I was protected in that way and could get the care and treatment I needed. \u00a0Now, whenever I talk to someone \u00a0that doesn’t have health insurance, \u00a0I tell them this story. \u00a0By the end of it they are usually convinced that they need to get health insurance!<\/p>\n

About a month later, I tried playing my saxophone again. \u00a0It was unbelievable! \u00a0For me this was the most noticeable difference.\u00a0 Yes, I wasn’t laughing anymore.\u00a0 I could swallow normally.\u00a0 I could go to the bathroom in public.\u00a0 But………… when I picked up my sax I was seriously 100% better than I had been over the last three years. \u00a0 I started playing and in moments my fingers were flying all over the keys.\u00a0 I hadn’t played that fast and that well in a long long time. \u00a0It also seemed like I was playing ideas that hadn’t occurred to me over the last few years. \u00a0I \u00a0just remember improvising on a song and being amazed at what was coming out. \u00a0To this day, I wonder if maybe the tumor was blocking or effecting my creativity in some way also during those years. \u00a0It sure felt like it. \u00a0I could finally tongue the notes right. \u00a0My tone was much better and you have to remember that this is after not playing at all over the last 2-3 months. \u00a0 I was giddy with excitement. \u00a0I probably played for eight hours that day.<\/p>\n

Now you probably think this is the end of the story, right? \u00a0 The tumor was out, I was back on my feet and not laughing anymore. \u00a0What else could go wrong? \u00a0Lots! \u00a0There is more to this story! \u00a0 \u00a0 See you next time in part 8<\/a>……………<\/p>\n","protected":false},"excerpt":{"rendered":"

Well………..where were we? \u00a0Oh yeah, in Mass General Hospital, waiting for my next surgery. \u00a0As I remember, \u00a0it was 2-3 days later. \u00a0 They came to get me for the surgery and it was an emotional time. \u00a0This was the big surgery where they were messing with my nerves, arteries and not to mention my […]<\/p>\n","protected":false},"author":63,"featured_media":101897,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_genesis_hide_title":false,"_genesis_hide_breadcrumbs":false,"_genesis_hide_singular_image":false,"_genesis_hide_footer_widgets":false,"_genesis_custom_body_class":"","_genesis_custom_post_class":"","_genesis_layout":"","footnotes":""},"categories":[226],"tags":[1734,224,225,1728,1731,8,1741],"class_list":{"0":"post-806","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-brain-tumor-story","8":"tag-boston","9":"tag-brain-tumor","10":"tag-laughing","11":"tag-meningioma","12":"tag-mgh","13":"tag-steve-neff","14":"tag-surgery","15":"entry"},"_links":{"self":[{"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/posts\/806","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/users\/63"}],"replies":[{"embeddable":true,"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/comments?post=806"}],"version-history":[{"count":0,"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/posts\/806\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/media\/101897"}],"wp:attachment":[{"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/media?parent=806"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/categories?post=806"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/tags?post=806"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}