I’ll do my best in this next part of the story to recount things in the proper order.\u00a0 To be honest,\u00a0 the next few parts of the story are a little vague and cloudy in my memory.<\/p>\n
I remember meeting with a Doctor to have the talk you have before a major surgery.\u00a0 His name was Dr. Harsh. (I thought that was a funny name for a surgeon) He basically laid out the entire plan for me, the options and the things that could go wrong. I remember thinking while he was talking ” Man, Dr. Harsh is harsh!” \u00a0 It was a hard conversation to have. \u00a0Basically, he told me that they wanted to take the tumor out by going through my left ear. Part of the surgery would take about five hours and they would cut around the top and back of the ear, cut through the skull and take out my inner ear. \u00a0They would then wrap me up and a few days later go back in, \u00a0lift up the left side of my brain and go underneath it to cut out the tumor.<\/p>\n
Now as you know, I had been a musician for most of my life.\u00a0 I was very concerned about losing my hearing in one ear and asked if there was an alternative way to do this so that I could save my ear.\u00a0 Dr Harsh said there was,\u00a0 but it was much more complicated and dangerous. It involved going through the back of my nose via my face. While he was talking about the dangers of that frontal procedure (including death and disfigurement),\u00a0 I interrupted him and said “That’s OK, I’ll lose the ear”. \u00a0 I figured I would still have one good ear and that would be better than being dead or having scars all over my face.\u00a0 He said he thought that was a good decision on my part…………<\/p>\n
Dr. Harsh then went through a list of things that could go wrong during the removal of the tumor. \u00a0The big word that stuck out to me was DEATH. \u00a0 He said there was a greater risk of other problems but DEATH could result also. \u00a0The tumor was in an area where there were a number of cranial nerves\u00a0 as well as a main artery and there was a chance that these could be affected in some way. The cranial nerves affect things like:<\/p>\n
-Sense Impulses through the body<\/p>\n
-Chewing<\/p>\n
-Equilibrium<\/p>\n
-Vision<\/p>\n
-Facial Sensation<\/p>\n
-Hearing<\/p>\n
-Respiration<\/p>\n
-Salivation, Swallowing<\/p>\n
-Smell<\/p>\n
-Taste<\/p>\n
Not a good list of things to have messed up. \u00a0(Especially, if you are a person who makes his living from playing the saxophone……..) He also talked about the chances that I could have paralysis of the face in some way. \u00a0He told me the total operation would be about 18 hours long.<\/p>\n
At this point in time,\u00a0 they weren’t sure if the tumor was malignant or benign.\u00a0 They would know that only after the surgery was done. \u00a0 Of course,\u00a0 if it was malignant that would mean chemotherapy, radiation and all that but I didn’t want to think about that just yet.\u00a0 I had enough to worry about right in front of me.<\/p>\n
At the end of my less than pleasant talk with Dr. Harsh,\u00a0 I had to sign a paper that basically said I agreed to the surgery and wouldn’t sue the hospital if I died on the operating table.\u00a0 I told him “If I die on the operating table you won’t hear from me again” (My attempt at being funny). \u00a0He didn’t laugh. \u00a0On the way home, I just kept imagining waking up with my head cut open and these guys poking my brain. \u00a0I had that nightmare a lot over the next few weeks.<\/p>\n
I went home that night feeling a bit numb about the whole thing. \u00a0All my friends were asking me how I was doing and what I was feeling. \u00a0They thought I was in denial I think. \u00a0I just felt kind of numb to the whole thing. I remember praying a whole lot during those two weeks. \u00a0I remember that I didn’t feel scared at all about dying. \u00a0I believed in God and I believed \u00a0in an after life.\u00a0 I believed that I would go there if I died. \u00a0I just thought that if that happened I would go under for the surgery and wake up and be in heaven if I died.\u00a0 All things considered that’s a pretty good way to go. It’s like dying in your sleep. \u00a0The thing that was more scary to me was having some of the other problems the doctor had talked to me about………paralysis, hearing problems, speech problems, vision problems………..I remember praying to be surrendered to whatever God’s plan for me was. I prayed that God would give me the strength to deal with it no matter how bad it would be.\u00a0 (Of course, I also prayed that it wouldn’t be that bad!)<\/p>\n
For those two weeks, I just hung out with my friends and family.\u00a0 My parents and brother came out to be with me.\u00a0\u00a0 I was spending a lot of time with my friends everyday. \u00a0The last night before the surgery, they all had a little get together for me in my apartment in Watertown MA.\u00a0 There was about 40 friends there from my church as well as musicians and convenience store coworkers as well as my family.\u00a0 They all shared about what I meant to them and the impact I had had on them. It was a pretty emotional time. \u00a0There were many tears shed (of course I was laughing the whole time don’t forget). \u00a0I remember thinking at the end of the night that if this was my last night on earth then this was a pretty good way to go. \u00a0I don’t think there was anything left unsaid. \u00a0I told everyone I was close to how much I loved them and how much they meant to me and they told me the same. \u00a0I felt very supported and loved and ready to go in for the surgery.<\/p>\n
The next day thing really get a bit crazy. My parents were there and were a major support to me. They were there for each step of it. \u00a0I remember talking to my Mom a lot and my Dad acted like he was running the hospital. \u00a0 I wouldn’t have been surprised if during the surgery my Dad was \u00a0right in the operating room looking over the Surgeon’s shoulder critiquing his scalpel usage. \u00a0You think I’m joking but my Dad was very concerned and involved in the whole process. I don’t remember this, but my Dad told me that at one point as they were bringing me in for surgery two doctors in the hallway started arguing with one another about who was going first. \u00a0I don’t know what my Dad said to them but I know he was quite mad and spoke his mind because of what he perceived as a disorganized mess while his son’s life hung in the balance. \u00a0Anyways, I will always be grateful to have had my parents there watching my back.<\/p>\n
They rolled me in for the first surgery that was to open up my skull and clear out my inner ear. \u00a0This was in preparation for the later surgery that would take out my brain tumor. \u00a0They asked me to count down from 100 as they put the mask over my face.\u00a0 I made a mental goal to get \u00a0to 90 before I went under. 100,99,98,97…………..gone. \u00a0My concentration and willpower wasn’t enough to overcome the gas…………..<\/p>\n
The next thing I knew, I woke up in some big room with stuff attached to me all over. \u00a0It’s weird when you go through this because you feel like time hasn’t moved. \u00a0Moments before,\u00a0 I was laying there counting down from 100 and now I was waking up in what seemed to be seconds later.\u00a0 When I opened my eyes,\u00a0 the room was spinning like crazy. \u00a0I mean it was spinning all over like when you get off one of those rides at the amusement park. \u00a0I immediately felt nauseous and started throwing up. \u00a0I remember throwing up a lot during those next 12 hours. I don’t know if it was the affects of the drugs or motion sickness from the room spinning.\u00a0 I tried to keep my eyes closed most of the time because every time I would open them I would lose it.\u00a0 This was without a doubt the worst I had ever felt in my entire life!<\/p>\n
The doctors came in and said that the surgery went well and that the spinning I was experiencing was from having had my left inner ear taken out. Your inner ear helps you with your equilibrium and balance so that made sense. \u00a0For a couple of days I felt absolutely horrible.\u00a0Man, did I have a headache!\u00a0 I just kept touching the bandage around my head while I waited for the next surgery to happen.\u00a0 \u00a0 \u00a0We’ll get to that in………..Part 7<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" I’ll do my best in this next part of the story to recount things in the proper order.\u00a0 To be honest,\u00a0 the next few parts of the story are a little vague and cloudy in my memory. I remember meeting with a Doctor to have the talk you have before a major surgery.\u00a0 His name […]<\/p>\n","protected":false},"author":63,"featured_media":101889,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_genesis_hide_title":false,"_genesis_hide_breadcrumbs":false,"_genesis_hide_singular_image":false,"_genesis_hide_footer_widgets":false,"_genesis_custom_body_class":"","_genesis_custom_post_class":"","_genesis_layout":"","footnotes":""},"categories":[226],"tags":[1734,224,1739,1736,225,1728,1731,1741],"class_list":{"0":"post-796","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-brain-tumor-story","8":"tag-boston","9":"tag-brain-tumor","10":"tag-doctors","11":"tag-hospital","12":"tag-laughing","13":"tag-meningioma","14":"tag-mgh","15":"tag-surgery","16":"entry"},"_links":{"self":[{"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/posts\/796","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/users\/63"}],"replies":[{"embeddable":true,"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/comments?post=796"}],"version-history":[{"count":0,"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/posts\/796\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/media\/101889"}],"wp:attachment":[{"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/media?parent=796"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/categories?post=796"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.neffmusic.com\/blog\/wp-json\/wp\/v2\/tags?post=796"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}